Children's Disability Training and Advocacy Network

Akwenda Intervention Programme

publications and the podcasts

stories from Akwenda families and from community stakeholders;

    Nabirye Grace

    Parent Facilitation

    "Before CDTAN, I felt lost and alone in raising my son with cerebral palsy. The training and support I received have changed our lives. Now, I understand his needs and can help him grow and thrive."

      Kakungulu Patrick

      Community Stakeholder

      "Thanks to CDTAN, my daughter received a wheelchair, and our community has become more accepting of children with disabilities. I now have hope for her future."

        Akello Janet

        Beneficiary

        "The caregiver workshops helped my family understand my condition better. They support me more now, and I feel included in everyday life. CDTAN gave me confidence and hope."

        information on where to get the TADs

        TADs play a crucial role in evidence-based rehabilitation by enhancing independence and helping children perform tasks they previously couldn’t, particularly in areas such as mobility, self-care, eating, and communication.

        At the beginning of the process, therapists assess each child’s need for TADs, and both the child and their caregivers are actively involved in determining which TAD is most appropriate. Examples include wheelchairs, standing frames, posture support chairs, walking aids, parallel bars, communication boards, and specially designed feeding cups. Whenever possible, TADs are locally produced using affordable materials, and caregivers contribute to the cost-sharing process to ensure that the devices remain both affordable and sustainable.

        link to the Malamulele Onward website and the Lusoga version of the C2C manual

        plain language summaries of the publications on the Akwenda page

        Volunteer Application Form

        Geoffrey Francis Omaria

        Community Volunteer

        A dedicated and passionate person/ volunteer who believes that true community is built on inclusion, not just integration. My goal is to ensure that every child living with a disability/additional support needs has the support and tools they need to live an independent fulfilled life.

        Dr. Namaganda Lukia Hamid (BEHS, MPH, PhD)

        Board Member (Vice Chairperson)

        Namaganda Lukia Hamid is a specialist in Public Health, with a strong focus on epidemiology and research methodologies. She obtained her PhD in Public Health from the Makerere University School of Public Health, where she also completed her Master of Public Health (MPH) and Bachelor of Environmental Health Science (BEHS) degrees. Her research primarily investigates health disparities affecting children and adolescents with disabilities, as well as issues related to injury-related disabilities, rehabilitation, and community living. Dr. Namaganda has contributed to esteemed international journals with her research findings and is proficient in academic writing. Furthermore, Dr. Hamid is an active member of the Research Ethics Review Board at the Islamic University in Uganda (IUIU), where she plays a vital role in ensuring the adherence to and advancement of ethical standards in research.

        Naigaga Rose

        Parent Facilitator
        My name is Naigaga Rose,I come from Nawansinge village, Iganga district and am a Ugandan.iwent to school and I stopped in an o,level section .I am aged 27years old .I am a parent of a child with disabilities, my son is called Adrian prosper kyisakye aged 7years ,he has cerebral palsy , he is adystonc and a level 3,child

        Mr. Eric Kintu

        Head of Programs / Co-Funder

        He is a qualified physiotherapist with notable experience in pediatric rehabilitation spanning over five years. He has been involved with the Akwenda intervention program at Makerere University School of Public Health, where he served as a trainer for both therapists and parents/caregivers who aimed to become facilitators or trainers themselves. He continues to engage with parents at Pro-Uganda: New Life Orthopaedic Centre in Mukono.

        Miss. Veronica Akareut

        Volunteer

        Is a human resources graduate who is enthusiastic about engaging with individuals and fostering organizational growth.

        Mr. Godfrey Wanjala

        Executive Director / Co-Funder

        He is a dedicated professional social worker with a strong commitment to advocating for the rights of individuals with disabilities, a field in which he has accumulated over seven years of valuable experience in community-based rehabilitation. He has served as a Community-Based Rehabilitation Officer for the Akwenda intervention program affiliated with Makerere University School of Public Health, where he created a communication and advocacy component, led various communication and advocacy sessions, and also co-authored. http://doi.org/10.1111/dmcn.16258. Which was developed and validated to evaluate the involvement of children with disabilities at both family and community levels. Additionally, he worked as a social worker with Ekisa Ministries and Children’s Home, where he championed the rights of children with disabilities, initiated community center outreach programs that allowed children with disabilities and their caregivers to access physiotherapy services and facilitate family reunification. He has also held positions as a field officer with BUVAD (Butakola Village Development Association), worked with Busia Youth and Children’s Ministries Uganda, and was a research assistant at World Vision. Throughout all these roles, he has consistently focused on advocacy, promotion of rights, empowerment and capacity building to help communities lead dignified and meaningful lives. Furthermore, he has received additional training in child protection from UNICEF, completed the Beyond Suffering program from Africa Renewable University, studied paper technology, obtained Good Clinical Practice certification from the NIDA Trial Network, participated in an Entrepreneurship and Business Skills program through Enterprise Uganda, and attended a Parenting Class at Abide Family Center.

        Mrs. Agwang Christine

        Board Member

        Is a nursing officer by profession with 8 years of experience working at Jinja National Referral Hospital in the pediatric ward, where she addresses early childhood complications and congenital abnormalities. Her additional responsibilities include performing phlebotomy and aseptic sample collection, managing early childhood illnesses, and conducting emergency triage. She salso assits in resuscitating infants and managing burns, sickle cell crises, as well as anemia. Additionally, she provides care for severe acute malnutrition and moderate acute malnutrition.

        Dr. Alice Apio

        Board Member (MBChB, MPH, Dip Global Health)- Treasurer to the Board

        She is a public health expert and clinical researcher with 12 years of experience in HIV/AIDS care and treatment, clinical research, and is currently employed as a health consultant with BDO East Africa, working under the Office of the Prime Minister to evaluate local government performance. Presently, she is pursuing her PhD in Public Health at JOOUST University in Kenya, supported by the East African Scholarship. In addition, she holds a postgraduate diploma in Global Health, and her aspiration is to achieve good health for all, driven by her passion for humanity; her motto is “One Health, One World.” She draws inspiration from individuals who consistently persevere. Her areas of expertise include *TB Clinical Management *Quality Improvement *Accurate Data Documentation *Program Management *Health System Strengthening *

        Dr. Gillian Saloojee

        Advisor to the Board & Management

        Dr. Gillian Saloojee is a pediatric physiotherapist who focuses on assisting children and young adults with disabilities and their families in rural, under-resourced African environments. She founded and previously served as the Executive Director of Malamulele Onward, a non-profit organization that offers therapy services and training for caregivers of children with cerebral palsy in impoverished rural areas of Southern Africa. She is presently engaged in various research initiatives aimed at children and youth with disabilities in low-resource settings and acts as an early intervention consultant for UNICEF.

        Prof Hans Forssberg

        Advisor to the Board & Management
        • Professor in Neuroscience, Karolinska Institutet
        • Consultant, Paediatric Neurology, Astrid Lindgren Children’s Hospital
        • Expert Advisor @ UNICEF; Developmental Delay and Disability

         

        Hans Forssberg serves as a Professor of Neuroscience at Karolinska Institutet and is a Consultant in Neuropaediatrics at Astrid Lindgren Children’s Hospital in Stockholm, Sweden. He played a key role in establishing the International Alliance of Academies of Childhood Disability and has held the position of its inaugural president. He has previously chaired the European Academy of Childhood Disability, served as dean, and was vice president of Karolinska Institutet; he has also been a member of the Nobel Committee for Physiology or Medicine.

        His studies have concentrated on children who experience neurodevelopmental disorders; covering translational research related to the mechanisms behind motor and cognitive impairments, as well as clinical research focused on creating innovative methods for assessment and intervention. In recent years, he has redirected his attention towards research on the global health of children with disabilities, especially in low- and middle-income nations. He has authored approximately 250 original research papers and ranks among the most cited global authorities on neurodevelopmental disorders (over 36,500 citations; h-index=86; Google Scholar). Currently, he serves as an expert adviser to UNICEF on a project that aims to formulate, execute, and assess global recommendations for the universal early identification and intervention for children experiencing developmental delays and disabilities, specifically intended for implementation in resource-limited environments.

        Isaac Byonanebye Dickson

        Board Member

        He is a qualified Physiotherapist and serves as the Director of Agape Rehabilitation Initiative Uganda, driven by a commitment to help others in every manner that God allows him to. His experience includes working at Cure Hospital, Ekisa Ministries and Children’s Home, Kagando Mission Hospital, and Sports Club Villa. Additionally, he has received training in trauma healing, paper technology, and holds a certificate as a trainer of trainers for pastors and leaders in biblical studies.

        Peter Barasa

        Chairperson Board of Governors

        He is a professional social worker committed to utilizing opportunities and resources to provide servant leadership and transformational services, emphasizing child well-being and community development. Currently, he holds the position of Project Director at the Vumgbala Child Development Centre, a Compassion-assisted initiative in Moyo district. He has previously worked as a program officer for Initiative for Peace and Development Uganda, a community facilitator for the Water School Busia Project, and a child sponsorship development assistant at World Vision in Busia area program. He has also received additional training in monitoring and evaluation and education.